Watch the First-Ever
Visual Snow Conference
In 2015, Sierra Domb began experiencing the onset of Visual Snow Syndrome (VSS), a challenging neurological condition that affects an estimated 2-3% of the population. As she sought a correct diagnosis, she faced a troubling lack of recognition for her condition and limited resources for those impacted by VSS. Realizing that many others around the world were experiencing similar struggles, including being misdiagnosed and overlooked, Sierra founded the Visual Snow Initiative to help create meaningful solutions.
Organized by Sierra Domb and the VSI team, one of their earliest efforts was the establishment of the first-ever Visual Snow Conference. Held on May 5th, 2018, at the University of California, San Francisco (UCSF), Sierra and her team hosted a free summit that brought together individuals affected by VSS, their loved ones, and experts from around the world. Doctors, researchers, and scientists with expertise in VSS traveled from Australia, Canada, England, and various cities across the United States. Alongside Sierra, they offered acknowledgment and validation to patients and their families. The event aimed to raise awareness, share the current body of research, provide education, offer resources, and foster a deeper understanding of VSS.
All of the videos from the 2018 Visual Snow Conference are available to watch below. ↓
DR. PETER GOADSBY
MD, PHD, DSC, PROFESSOR OF NEUROLOGY AT UCLA, RECIPIENT OF THE 2021 BRAIN PRIZE
KIRK SCOTT
MASTER OF CEREMONIES AND PHILANTHROPIST
SIERRA DOMB
FOUNDER OF THE VISUAL SNOW INITIATIVE & THE VISUAL SNOW CONFERENCE, ADVOCATE, AND RESEARCH COLLABORATOR
DR. YASSER KHAN
SPECIALIST IN OCULOPLASTIC, ORBITAL, AND OPHTHALMIC SURGERY
MATTHEW RENZE
AUTHOR, DATA SCIENCE CONSULTANT, AND INTERNATIONAL SPEAKER
DR. JOANNE FIELDING
PHD, OCULAR MOTOR RESEARCH UNIT, “FIELDING/WHITE GROUP,” DEPARTMENT OF NEUROLOGY
DR. VICTORIA SUSAN PELAK
MD, PROFESSOR OF NEUROLOGY AND OPHTHALMOLOGY, UNIVERSITY OF COLORADO SCHOOL OF MEDICINE
DR. OWEN WHITE
PHD, MD, M.SC, MB.BS, OCULAR MOTOR RESEARCH UNIT, “FIELDING/WHITE GROUP,” DEPARTMENT OF NEUROLOGY
JAMES T. FULTON
ACCLAIMED RESEARCHER IN NEURON & NEURAL SYSTEMS
Support VSS Research Today
Every donation to the Visual Snow Initiative funds critical Visual Snow Syndrome (VSS) research. Your tax-deductible contribution drives global research efforts and creates a meaningful impact on the lives of those affected by VSS.
