What Experts Are Saying About VSI
Visual Snow Initiative Medical Professional Testimonials
“The VSI has played an incredible role in the advancement of VSS awareness, education, and research. I have had patients who made their own accurate diagnosis of VSS on the basis of their information. And I am able to use the VSI’s webpages as a trustworthy resource that allows my patients a place to land for information after the diagnosis.”
“The recognition of Visual Snow, broadening education, and funding research would not have happened were it not for the Visual Snow Initiative. The condition is now being studied actively by a number of groups on several continents. Research would be idling in a backwater without VSI. Thank you to the Visual Snow Initiative for all you have done and continue to do.”
“Almost single-handedly, the Visual Snow Initiative has educated Visual Snow Syndrome patients and helped them understand that they have a true disorder. Their team has played a pivotal role in bringing together Visual Snow patient groups with physicians and researchers from around the world.”
“Visual Snow Initiative is the key player dedicated to improving the well-being of individuals affected by visual snow syndrome. VSI is crucial in all aspects: raising awareness, promoting education, and – importantly – supporting and coordinating research. They were able to contact clinicians and initiate research. This resulted in the definition of criteria for visual snow syndrome that are now used all over the world and an enormous increase of our understanding of the underlying mechanisms.”
“The VSI has been instrumental in raising awareness and acceptance of Visual Snow Syndrome as a neurological condition, educating patients about their disorder, and kickstarting the efforts made by researchers to understand what underlies their myriad of visual and other sensory symptoms. The work initiated by VSI has ensured that physicians and ophthalmologists are now mindful of the constellation of symptoms that define the syndrome, ensuring that patients’ concerns are not dismissed and that patient resources are now available.”
“The VSI has played an incredible role in the advancement of VSS awareness, education, and research. I have had patients who made their own accurate diagnosis of VSS on the basis of their information. And I am able to use the VSI’s webpages as a trustworthy resource that allows my patients a place to land for information after the diagnosis.”
“The recognition of Visual Snow, broadening education, and funding research would not have happened were it not for the Visual Snow Initiative. The condition is now being studied actively by a number of groups on several continents. Research would be idling in a backwater without VSI. Thank you to the Visual Snow Initiative for all you have done and continue to do.”
Collaborators
Some of the institutions VSI has worked with include:
Media Features
The story of VSI and our global impact have been featured by the following media outlets:
Medical & Scientific
Publications
Our global impact and VSI-funded research studies have been featured in the following medical and scientific journals, as well as clinical databases:
Make a Difference
Support VSS Research Today
Every donation to the Visual Snow Initiative funds critical Visual Snow Syndrome (VSS) research. Your tax-deductible contribution drives global research efforts and creates a meaningful impact on the lives of those affected by VSS.
