The Visual Snow Initiative (VSI) and the AnCan Foundation invite you to a special pre-support group session featuring Disco Face, a musician, producer, and songwriter living with Visual Snow Syndrome (VSS). In addition to his work as a musical artist, Disco Face collaborates with VSI to raise awareness for VSS. Before our monthly virtual VSS support group, Disco Face will share his experience with VSS, engage with attendees, and answer questions.
Event Details
đź“… Monday, March 3rd
🕢 7:30 PM (EST) – Pre-Support Group Session with Disco Face
🕗 8:00 PM (EST) – Visual Snow Syndrome (VSS) Support Group Begins
Who Can Attend?
This event is open to all of VSI’s supporters and individuals with Visual Snow Syndrome.
Note: We kindly ask that all attendees follow the group guidelines listed below to ensure a respectful and supportive environment.To join, please visit our VSS Support Group page on the day and time of the event.
About Disco Face
Disco Face is a genre-blending musical artist known for his innovative electronic dance and dark alternative music. In October 2023, he went viral on TikTok after sharing how VSS causes him to see constant static and visual distortions. His openness about the condition resonated with millions, raising awareness about its impact.
Despite the challenges—including severe anxiety and panic attacks—Disco Face continues to create music, collaborating with major artists like CeeLo Green and David Kushner. His signature reflective mask represents both his artistic identity and his experience with VSS.
To learn more about Disco Face’s journey with VSS, read VSI Founder Sierra Domb’s interview with him here: Disco Face: The Hero Behind The Mask
About Our Visual Snow Syndrome Support Group
In partnership with the AnCan Foundation, VSI hosts monthly virtual support groups for those affected by Visual Snow Syndrome. These peer-moderated sessions provide a welcoming space to share experiences, gain support, and connect with others who understand the challenges of living with VSS.
What to Expect
Our virtual support group goes beyond discussing the physical symptoms of VSS—it also addresses the emotional and mental health impact of the condition. Whether you have VSS yourself or support a loved one, this is intended to be a safe space for you.
Note: This group is not intended for medical advice. For medical questions, consult a qualified healthcare provider. Visit the Visual Snow Initiative website for additional VSS resources.
Moderators: Leah Woods, Brianna Bang, and Amber Cote—who all have VSS—lead discussions, with additional support from AnCan’s Alexa Jett.
Session Format
Before our monthly virtual VSS support group, Disco Face will share his experience with VSS, engage with attendees, and answer questions.
• Moderators will ensure everyone has the opportunity to speak.
• Late arrivals will be added to the speaking order.
• Please be patient, as priority is given to early arrivals.
Participation Options
Video Chat: Connect with others face-to-face.
• Call-In Option: If joining via audio, please display your first name so moderators can address you properly.
Group Guidelines
To maintain a respectful and supportive environment, all attendees are expected to follow these guidelines:
1. No bullying, harassment, aggression, or inappropriate behavior.
2. Use respectful, non-threatening language.
3. Respect others’ experiences and perspectives.
4. Differences of opinion are welcome, as long as they are expressed kindly and constructively.
5. If joining without video, please display your first name for proper identification.
Join Us
If you’re interested in attending, click the link below to join on the day and time of the event:
đź”— VSS Support Group
Living with VSS can feel isolating for some, but you are not alone. This group provides an opportunity to connect with others around the world who understand your experiences.
We look forward to seeing you there!
VSI & AnCan: Learn More About Our Visual Snow Syndrome Support Group
This virtual event, hosted by the AnCan Foundation and Visual Snow Initiative, is an extension of our monthly Visual Snow Syndrome support group. In collaboration with AnCan, VSI offers peer-moderated, face-to-face sessions each month, providing a safe and supportive space to share experiences, receive guidance, and connect with others facing the challenges of VSS.
