Monash University Recruiting Participants for Visual Snow Syndrome Research Study

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The Impact of Family History, Childhood Maltreatment, and Emotion Regulation on Fibromyalgia, Migraine, and Visual Snow Syndrome

A new study led by Christen Velevski, a PhD candidate in neuroscience at Monash University, has been launched under the supervision of Doctor & Associate Professor Joanne Fielding and Doctor & Professor Owen White, members of the Visual Snow Initiative’s Global Research Team.

This research will explore potential connections between family history, childhood maltreatment, and emotion regulation, examining their impact on conditions such as fibromyalgia, chronic migraines, and Visual Snow Syndrome (VSS).

The study aims to determine how these factors influence the severity, longevity, and onset of symptoms, as well as the distinct characteristics of VSS and related disorders.

By gaining deeper insight into these influences, researchers aim to further understand the underlying causes of VSS and identify additional ways to improve symptom management for those living with this condition.

Who Can Participate?

To participate, you must:

  • Be between 18 and 60 years old
  • Have a confirmed diagnosis of either fibromyalgia, chronic migraine, or Visual Snow Syndrome by a medical professional, such as a neurologist or rheumatologist
  • Have no other diagnosed clinical neurological conditions (you may participate if you have more than one of the listed conditions)
  • Be fluent in English (ability to read, write, speak, and understand English)

What Will You Be Asked to Do?

Participation involves completing an online survey, which takes approximately 60 minutes to complete. The survey consists of questions rated on a Likert scale (from strongly disagree to strongly agree) about your experiences with the conditions. The survey can be completed in multiple sessions, making it accessible to those with busy schedules.

How to Participate

If you’re interested in participating, you can contact Christen Velevski at [email protected] for more information or to get involved in the study