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Sierra Domb Announces Historic ICD Milestone for Visual Snow Syndrome

The Visual Snow Initiative (VSI) has concluded the last phase of its mission to secure a first-ever ICD code for Visual Snow Syndrome (VSS). Our Founder, Sierra Domb, has been working alongside Dr. Peter Goadsby and Dr. Owen White, for the inclusion of VSS in the latest edition of the International Classification Diseases, or ICD-11, which is maintained by the World Health Organization (WHO).

Sierra Domb Shares 2024 VSI Updates on Visual Snow Syndrome

Sierra Domb, our Founder, shares the Visual Snow Initiative’s latest updates on Visual Snow Syndrome, including:
  • A new medication study
  • Ongoing collaborative global research
  • Insights from experts
  • Supportive and educational resources
  • Advocacy efforts
  • Additional news and developments
VSI Videos

TEDx: What is Visual Snow?
Transforming Anguish Into Action

Visual Snow Syndrome activist and Founder of the Visual Snow Initiative (VSI), Sierra Domb, shares her experience of starting a revolutionary research foundation. After she began experiencing symptoms of Visual Snow Syndrome, Sierra became a philanthropic pioneer, vowing to help those who suffer from the condition. Passionate about empowering others to overcome adversity, Sierra implemented innovative techniques to generate a positive impact in the lives of millions of people worldwide.

VSI Website Walkthrough

This detailed video is guide designed to help you navigate all the information and resources related to Visual Snow Syndrome (VSS), Visual Snow Initiative (VSI), and more available on our website.

If you need guidance on navigating our website or are looking for something specific but are not sure where to start, we recommend watching this tutorial.

New Video Series featuring
Dr. Peter Goadsby

In this video series, Dr. Peter Goadsby will delve into various topics, addressing questions about Visual Snow Syndrome (VSS), upcoming studies, brain imaging, his opinion on current studies and treatment options, as well as his collaboration with VSI and our Founder, Sierra Domb. He will provide expert insights and share his personal perspectives on the condition.

Video Series featuring
Dr. Leanna Dudley

Learn more about Dr. Leanne Dudley’s experience seeing and treating patients with Visual Snow Syndrome (VSS), as well as the methods she uses, the success rate, her insights regarding VSS and the patient population, her outlook on treatments and research, vision therapy, neuro-optometry, and more. Dr. Dudley’s patient, Brianna Albrecht, also shares her journey with VSS and experience with treatment.

Video Series featuring
Dr. Christoph Schankin and Dr. Antonia Klein

In this video series, Dr. Schankin and Dr. Klein will delve into various topics, addressing questions about Visual Snow Syndrome (VSS), their upcoming study, and their collaboration with the Visual Snow Initiative (VSI). They provide expert insights and share their personal perspectives on the condition.

Video Series featuring
Dr. Francesca Puledda

Dr Francesca Puledda is a Neurologist and post-doctoral research in the headache group at King’s College London. She graduated as an MD in Sapienza University of Rome, where she also completed her specialization in Neurology in 2016.

Be Part of the Solution

Support Visual Snow Syndrome Research

All donations to the Visual Snow Initiative go directly to Visual Snow Syndrome (VSS) research.

Your tax-deductible contribution ensures that global research will continue and makes a positive difference in the lives of people affected by VSS.