Meet Our

Warrior of the Week

These inspiring individuals with Visual Snow Syndrome are sharing their experiences living with this condition and how they try their best to overcome its symptoms everyday.

Spotlight on:

Visual Snow Warrior of the Week-Lisa Rigby

Meet our #WarriorOfTheWeek, Lisa Rigby! ????

Spotlight on:  Lisa Rigby

I have had visual snow for as long as I can remember. I first became aware that other people didn’t see this way when I was 10. I started crying and told my mother “there are dots everywhere! You don’t see it?”. She took me to the eye doctor who said I had 20/10 vision and that “some people are just like that” I am 52 now and it has never progressed, although now that I need glasses, I am more aware of the dots when I’m not wearing my glasses. I have also had a few episodes where I lost vision in one eye, which then progressed to both eyes — this only lasted a few hours but my father has had that too. I saw a neurologist and they said it was some kind of migraine aura (although I do not have migraines). I make the connection now between VS and these episodes, since I’ve read this has happened to others with VS. I’ve also had mild tinnitus since childhood, which I only recently realized may be connected with VS. Even though I’ve had lifelong VS, I graduated from art school and have a very good career as a photographer. Sometimes I think I may have a harder time discerning subtleties of color, but I also wonder if having VS lets me notice form and composition more. I believe there is probably some connection with having VS and living a life where visuals have such a predominant role. I’ve heard about people struggling with VS and thought that if they could be in my head for a day, it might help them to habituate to it. Mostly my brain just ignores it.

Share this Story

Share Your Story

Become VSI’s next Warrior of the Week!

Each week, VSI shares the stories of people with Visual Snow Syndrome from around the world.

Share this Story
More Warriors

Latest Warriors of the Week

Be Part of the Solution

Support Visual Snow Research

Your generous tax-deductible donation ensures we can continue to generate awareness, education, resources, patient advocacy, treatments, and research to help people affected by Visual Snow Syndrome worldwide.