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Warrior of the Week

These inspiring individuals with Visual Snow Syndrome are sharing their experiences living with this condition and how they try their best to overcome its symptoms everyday.

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Sunni

When I was a child, I’d look up at the ceiling on my sleepless nights and see millions of tiny dots. If I focused on them hard enough, I could almost imagine them moving as one, like a vast ocean of stars. Very poetic, I know, but I always assumed everyone saw these tiny little dots.

Many years later, I recalled telling my best friend about the dots in 2020-something (I can’t remember the exact year) — which looked more like subtle static everywhere I looked — and she was the one who broke the news. I was, in fact, one of the few who saw this phenomenon. I remember scouring the internet for details about my strange affliction, and that’s when I stumbled upon VSS. Admittedly, I haven’t done much research on the subject. But it’s comforting to know that I’m not alone in this.

My entire life, I’ve always been on the more creative side. I love to draw, write, take photos, and edit goofy videos for people’s entertainment. A good quote I heard from a game I played said, “Painting is not about replicating the world, it’s about interpreting and improving on it, showing something you see.” ~ Carl Manfred, Detroit: Become Human. I found that to be a beautiful way to express how I feel when I work on something creative, whether it be photography, drawing, writing, or even editing videos. I love showing everyone how I see the world, even if I partially see it in static while I’m at it.

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